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Compassionate Care ALS http://www.ccals.org

Compassionate Care ALS

P.O. Box 1052

West Falmouth, MA 02574Map this

The mission of Compassionate Care ALS (CCALS) is to model compassion to those affected by ALS by providing educational and legal resources, respite opportunities, instruction and guidance, subsidy of living aids and assistance, and intimate dialogue with patients and their caregivers, families, and...

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For more information:

Name: Ron Hoffman
Position: Founder and Executive Director
Email: ron@ccals.org
Phone: 508-563-3677

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ALS Patient, Family, and Caregiver Support ProgramThe direct services offered through our main program, the ALS Patient, Family, and Caregiver Support Program, include making home visits, answering basic requests for information and referral, guiding families through intimate dialogue about disease progression, dying and death, coping with a spouse's death, and other issues related to ALS, and the subsidy of respite services and durable goods that are not covered by insurance. We refer ALS patients to specialists in integrative therapy, such as craniosacral therapists or massage therapists, as well as counselors, attorneys, home cleaning services, and even contractors, depending on whether or not a family's home requires construction for wheelchair access. When providing services to ALS families, we work with each family one-on-one. We get to know them and let them identify their own needs and their own level of desired assistance. Often our time is spent simply being present with families, and listening. We are active listeners and are sensitive to the many stages of grief involved with facing terminal illness. This sensitivity is the essence of how we serve others. We know that each family member can be at a different stage, which is why we serve the entire network of care for each ALS patient.
Cultivating Compassion Education SeriesCCALS has developed the \"Cultivating Compassion\" workshop series, which educates more than 500 individuals annually about the realities of living and dying with ALS with a focus is on providing sensitive, compassionate care for all involved in end of life issues. Our audiences have included persons with ALS and their family and caregivers, health care professionals, friends of ALS patients, and others in the community. We have several different workshops within \"Cultivating Compassion\" each are tailored to specific audiences, topics, and circumstances related to the ALS journey. Cultivating Compassion typically focuses on one of the following topics: ALS Naked: Living with ALS; Providing Compassionate Care; Awakening to Living and Dying; Care of the Caregiver; or Meditation and Contemplative Practice. Sometimes we cover multiple topics and target niche populations such as \"Men of ALS,\" \"Women of ALS,\" \"Caregiver to Caregiver,\" or \"Beyond ALS\" (for ALS patient surviving partners). \"Circles of Support\" are the more intimate arm of \"Cultivating Compassion,\" where Compassionate Care ALS staff guide small or large groups of family, friends or ALS caregivers in facilitated dialogue. We lead these sessions at the request of families and usually travel and present at their homes. We discuss everything from logistics of care and how to organize community support to coping with grief and remaining compassionate, even through the toughest situations. We also regularly conduct in-services for healthcare workers and speaking engagements for groups of all sizes.
Wish ListCompassionate Care ALS gladly accepts donations of the following: -Gift certificates to hotels, inns, or bed and breakfasts for client/caregiver respite retreats -Airline mileage -Gas cards
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